tag:blogger.com,1999:blog-6603883426306376921.post3957183037197940417..comments2023-05-13T08:06:33.385-04:00Comments on Lilies and Elephants: P.A.N.K.Maya Northen Augellihttp://www.blogger.com/profile/02469306092296810650noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6603883426306376921.post-74356085319235835992013-05-07T16:54:09.606-04:002013-05-07T16:54:09.606-04:00Thank you for sharing your story. I'm sure it ...Thank you for sharing your story. I'm sure it wasn't easy, as mine was not. <br /><br />I think a lot of people have faced the... "If I'd known" question. But I also think that life takes us in all directions, and perhaps they (and you) were somehow not meant to know. Maybe one of those kids born with a condition, or as a carrier, will grow up and use that as motivation to discover a treatment or something. <br /><br />Thank you also for your kind words. I have no plans to stop blogging! :-) Maya Northen Augellihttps://www.blogger.com/profile/02469306092296810650noreply@blogger.comtag:blogger.com,1999:blog-6603883426306376921.post-69906822866839321582013-05-07T16:41:51.899-04:002013-05-07T16:41:51.899-04:00Maya, Thank You for your bravery. I too discovere...Maya, Thank You for your bravery. I too discovered a genetic condition carried by my X-Wife's family. Duchenne muscular dystrophy - they are carriers of the gene and we did not know this prior to her birth. It is a very scary prospect as that strain of MD is peculiar in that it affects males, and the females are carriers. It goes every other generation of daughters - like 1, 3 and 5 daughters would be carriers. My X-Wife was #3 and is a carrier. Her oldest sister had a son prior to my daughter being born, 2 years prior, and Christopher was diagnosed as having Duchennes.<br /><br />My daughter is a carrier and if she has a son - it would have a 99% chance of having the disease. <br /><br />I do not know myself - if - knowing what I know now that I would have had a child back then. My daughter now has to face that same choice.<br /><br />It's a personal choice and I understand totally.<br /><br />Thank you for your honesty, leadership and heart Maya - I admire each one of them.<br /><br />PS - keep blogging !Patrick Whttps://www.blogger.com/profile/05258203955745535593noreply@blogger.comtag:blogger.com,1999:blog-6603883426306376921.post-42855658717718916132013-05-07T16:06:29.180-04:002013-05-07T16:06:29.180-04:00*that's why the "get out of the suburbs a...*that's why the "get out of the suburbs article infuriated me. Obviously the one above didn't, I wrote it! :-) Maya Northen Augellihttps://www.blogger.com/profile/02469306092296810650noreply@blogger.comtag:blogger.com,1999:blog-6603883426306376921.post-64904655778994347272013-05-07T16:05:24.083-04:002013-05-07T16:05:24.083-04:00I 150% agree! This is personally my story which is...I 150% agree! This is personally my story which is why I focused on my condition, and it was fueled from discussion about others with conditions dealing with similar decisions. That being said, whatever someone's reasons, they are their reasons, and they deserve respect. To me, having children just to have them even if I didn't want to/couldn't care for them would be selfish. That's why this article infuriated me so much. To attack a person's personal, private decision is appalling. And as you said, there are certainly enough children who need loving homes and loving parents, and if I were to choose to want to raise a child, that is the route I would go, absolutely! Maya Northen Augellihttps://www.blogger.com/profile/02469306092296810650noreply@blogger.comtag:blogger.com,1999:blog-6603883426306376921.post-42405323051290853962013-05-07T15:42:08.752-04:002013-05-07T15:42:08.752-04:00I guess what I don't get is why it is selfish ...I guess what I don't get is why it is selfish not to have children. I know that your condition plays into your decision. But, what if you were completely healthy? I still don't find it selfish to decide not to have children. What is selfish is having Children that you do not want or cannot take care of. There is no shortage of people in this world. Our race is not going extinct. I think it is a very personal decision that has everything to do with your personality, goals, dreams, lifestyle, etc and nothing to do with how selfish some is.Maurahttps://www.blogger.com/profile/01684747396994972505noreply@blogger.com