Showing posts with label #chronicillness. Show all posts
Showing posts with label #chronicillness. Show all posts

Saturday, October 10, 2015

When You Say 'Be Yourself', I Take You Literally

If it's not abundantly evident by the contents of this blog. I'm a pretty open book. Despite my numerous insecurities over the years, some of which I still struggle with, I'm relatively comfortable discussing who I truly am, faults and insecurities and "issues" and all. In fact, it's when I am able to have these conversations, to broach these deeper internal subjects with others, that I feel most comfortable. I'm pretty awful at small talk. I don't have anything against it in theory, I just am really awkward at it.  And while I'm relatively used to feeling awkward by now and joke about it plenty, it's not my favorite feeling, as you might imagine. I've simply come to grips with reality.

The point of all of this is to say, I'm OK with being myself. My awkward, depressed, anxious, introverted, mood cycling, geeky, dorky, tomboy-ish, uncoordinated, deep thinking, vastly lost in the imaginative world, self. I often quote Charles M. Schultz in saying, "Be Yourself. No one can say you're doing it wrong." And I live it every day, at times to my detriment.  So when someone says something to me like, "You'll be fine, just be yourself", I take them literally. In doing so, I know one of two things is likely to happen:  either this person genuinely likes me for my real self and means it, or it's going to be a disaster.

The problem with "be yourself", as it's ubiquitously used these days, is that it's become cliche. People say it without thinking about all of your "you" characteristics and how they may fit into the specific situaiton. Additionally, they think that when they say "be yourself", that you automatically understand that there are certain parts of "yourself" that are acceptable in this situation and others that are not, and that you can and will easily hide those parts that are not. Basically, they expect you to telepathically intuit the version of yourself that they expect you to be in the given situation. Now, in some cases, this is probably rather common sense. For instance, just because you enjoy stand up comedy does not mean you stand up and tell jokes in the middle of grandma's funeral. But in other cases, what they assume and expect may not be as easily discerned, or as simple for you to do.

Let me give you an example: I'm invited to a party where there are going to be a ton of people, none whom I know apart from the party thrower.  There will be loud music and lots of alcohol, which comes with the expectation that everyone will be getting drunk. Meanwhile, I'm an introvert with social anxiety and say, for example's sake, I'm in the middle of a rough depressive cycle. I get overwhelmed with large crowds and excessive noise, and drink much these days for health reasons. Let's add in that I have to drive home, so even if I wanted to "let my hair down", I really couldn't, at least not when it comes to joining in the drunkenness. But my guess is, that when the party thrower says "be yourself", they assume I'm going to be at ease and participate in the party as they would - because naturally, having fun and drinking and talking to lots of people in a large crowd with loud music is what everyone does at a party, right? And if not, it's what they should be doing. It's the social norm, after all. But in actuality, if I'm myself, I'll stand quietly in the corner, sipping a soda, nervous to talk to anyone and desperately hoping there's a dog I can play with so that I can avoid interaction by pretending I feel sorry for the dog who's not getting enough attention.


What's worse is that the party host, who knows me well and who extended the invitation telling me to  be myself, is both surprised and upset by my level of participation (or lack thereof) in the traditional party festivities. They somehow expected me to turn into an extrovert who loves crowds, gets crazy at parties, and fits right in, despite the fact that my natural self, which they told me to be, indicates everything to the contrary. They then say things like "why can't you just relax and have fun?" And I have to explain to them that big parties with lots of noise and strangers and alcohol that I'm expected to, yet for numerous reasons can't. consume, are neither relaxing or fun to me. They don't understand, because these things are fun to them and others and therefore I should be able to have fun doing these also.  I get more frustrated with them for imposing their standards on me. And the cycle goes round and round.

Introverts and extroverts can get along. Socially anxious and socially comfortable people can get along. Those with depression and cycling and those without can get along. But  to do so we must understand that what's fun and relaxing to one group may well not be to another. We can't make book club any more exciting for you, so why is it fair to expect us to have a great time at a party that makes us anxious? Instead, perhaps see if you can appreciate that we've tried. That you were important enough to us that we put ourselves in an uncomfortable and anxiety producing situation because you said you really wanted us there. In fact, you said you wanted us there and to be ourselves. So we went. And we were ourselves. We did exactly what you asked. We just didn't enjoy it. Nor was that ever part of the deal, at least not to us. To you, it was implicitly understood.

The bottom line is, if you want us to be ourselves, then by all means tell us. But if you want us to be something else, let us know what exactly that is. This doesn't mean we will, or we can, but perhaps we can come to a compromise. Perhaps we can say, "I'll come to the party. I'll try my best to meet strangers. I can't promise I won't be awkward, but I'll not hide in the corner petting the dog all night (ok I'll probably pet the dog but not in the corner and not all night)." And you can say, "I'd really appreciate that. It means a lot to me that you're even there and trying because I know how difficult it is for you. I don't expect you to be the life of the party, I understand if you can't drink, and if you only stay for a little while. I'm just glad to have you there at all." And maybe we're not all 100 percent happy. But at least we're not both 100 percent miserable. 

Wednesday, July 29, 2015

Does Chronic Illness Make Us Less Concerned About Acute Sickness?

Yesterday I had a discussion with a friend about sickness and illness. Which, as a mental health and chronic illness advocate, is far from unusual. But this particular discussion was about acute illnesses - communicable sicknesses such as stomach viruses and flus - and avoiding them.  It occurred to me, and then was said out loud by me because my filtering mechanism is not strong, that compared to a lot of people these days, I appear rather unconcerned about this kind of thing.

Don't get me wrong, if I know you have a stomach virus, I'm not jumping up and down to share your drink or anything that may obviously make my chances of getting said virus greater.  I take appropriate precaution not to catch something if I know someone is sick or a virus is "going around". Nobody, including myself, wants the flu or a stomach virus or anything of the like.  I equally get all necessary prescriptions and vaccinations needed when traveling overseas - I don't want malaria or Typhoid fever any more than the next woman. But when everyone's seemingly un-contagious and I'm not in a third world country, I'm not a person who particularly worries about the "what if".  For instance, the gym is a pretty gross and sweaty place. Money is passed through who knows how many hands before it reaches you. You don't know who last sat on that seat at the restaurant. But I am generally not too phased by this. (Exception: rashes of any kind including poison ivy/oak/sumac, or even the slightest possibility of them, make me run screaming like a three-year old for some reason).

I got to thinking: why is this? I've had some pretty rough illnesses in my life including scarlet fever, shingles, German measles, mono, Epstein barre, and encephalitis that spawned from (apparently) a very basic cold or virus that worked itself into my brain. One would think I'd be overly cautious. But upon further reflection, I think I began to understand.

I've had cyclothymia since birth. I'll have it until the day I die. It is a genetic condition and nothing that I, or anyone else, could have done would have changed that.  It is obviously not communicable, aside from being genetically passed down, and I don't think that counts. And no matter what I do, or don't do, I will have this condition. Always. 'Til death do us part.  Furthermore, my cycles are rather haphazard (or so it appears to me). While mood cycling can be aggravated by things such as lack of sleep, too much caffeine or alcohol, or stressful situations, and it can be helped by medication and healthy lifestyle choices, I cannot prevent myself completely from cycling, nor control when it occurs or whether I'll be hypomanic or depressive when it does hit.

There are days when getting out of bed, getting showered and dressed takes everything I have physically, emotionally, mentally.  Then, I get to go about my day pretending nothing's wrong, when it feels like everything is. And so, on days when this isn't the case, when I'm not in the middle of a depressive episode, I quite simply don't want to think about being sick, or potentially being sick, or anything even remotely related to sick.  In fact, I want to scream from the rooftops, "Check me out, I'm still here! Take that, depression, you S.O.B, you didn't win that round!"  On the days when I feel well, I want to enjoy life with as little worry as possible, because soon enough, I won't be able to. Nothing I can do, no precaution I can take, can stop me from eventually cycling into depression again. As much as this sounds like it sucks - and believe me, it does - there's also a bit of a calm that comes when you realize that its reoccurrence is not your fault, and that more or less, spending all of your good days worrying about when the bad will take hold is a waste of the precious positive, happy energy you have on those days. And maybe I subconsciously apply that thought process to all illness. I've never particularly thought about it until now, but I guess with my mess of a brain it makes sense.

Perhaps this lack of concern over acute sickness is reckless. To clarify (as I'm a pretty big believer in karma and don't want to stick my foot in my mouth here) I'm by no means saying that the stomach flu or anything similar is "no big deal." Because I had a stomach virus this past winter and it &%*%ing sucked. I sat on the bathroom floor hugging the toilet "praying" in my Buddhist way for something, anything to make me feel better. So please, don't get the wrong impression. I completely understand why people are concerned about acute sickness and take all precautions they deem necessary.  More, I wondered why I didn't fall under this category, being so involved in the world of illness and all.

So I'm curious how others with chronic illness feel about the topic. Does having a chronic illness make you more concerned about acute sickness? Or do you fall more into the "I might as well enjoy it while I can, because I'll be sick again soon enough" category?  As always comments welcome below.