How Often Do You Ask For Permission?

Have you ever asked a question of someone - significant other, friend, coworker, parent, kid, pet, etc - and immediately afterward caught yourself asking, "Why on earth did I need to ask them that?". I do it, all the time. And to clarify, not any question. I'm not talking philosophical discussions or quizzo facts. I'm talking about asking permission for silly things that absolutely don't require it. Here are a few examples:

"Do you mind if I use the bathroom before I start on xyz?" Yes, I've asked probably every person regularly in my life, at one point or another, if they mind if I do essential things like use the bathroom.

"Is it OK if I wear this?" Not to anything specific that would impact the person/people, to clarify. Just to make sure they're OK with it, I guess. Because I'm always afraid I've chosen wrong somehow.

If I'm not asking people's permission, I'm asking their opinion, in almost a permission-y way. I'll be sending an email about something and read it out loud to them to make sure... that I know how to write an email? I don't even know why. I was the VP of communications for a big organization. I have a Master's in Marketing. I am a published writer. I know how to write and communicate. There's zero point in my painstakingly seeking approval from others for a basic email. But I'm so sure I somehow got it wrong that I ask, "just in case". 

I ask people's opinions on how to cook something as I'm staring at a recipe because I don't trust myself to even find a good recipe. I ask how to wash something as I'm staring at the laundry label, because I doubt myself. You get the picture. I'm always certain someone else knows better than me, in everything.

I'm a chronic permission asker. When you battle with depression, your brain often lies to you. It tells you that you're not good enough, that you don't know anything, that you're not capable. It tells you that if someone claims to know better, you should just believe them because really, what do you know? After all, your brain makes you feel anxious or depressed "for no reason."  (Note: this isn't true, the reason is an illness, but it's how depression makes you feel.) You've been convinced not to trust your views, your thought process. Because you often see things differently, more emotionally, it's easy for depression to convince you that you aren't logical and therefore can't possibly come to the right conclusion. Because of these lies, and the chronic low self-esteem and self-worth that often result, its easier to fall into permission and opinion asking as a default, instead of trusting ourselves.

Let me step back and take a moment to further clarify, I'm not asking about permission to do something that actually affects someone else. Of course, I'm not going to spend tons of money out of our joint banking account without asking my husband. I'm not going to make plans that include a friend without checking with them, or make plans on a Tuesday that don't include my friend, if we have a standing Tuesday friend-date together. I'm not saying we should live our lives in a bubble, thinking only of ourselves. Far from it. Considering others when it could/does affect them is just common courtesy.  I'm talking about things that, in all reality, don't affect another person's time, money, plans, efforts, etc. I'm talking about things that don't take anything away from anyone else. Most of the time, when I ask permission, it's not something that I'm asking out of consideration. I'm simply asking because it's become automatic - I never want to upset anyone or do the "wrong" thing, so I'm overly cautious about making sure everyone is OK with everything. And I don't trust my brain to make this type of decision.

The problem with being a chronic permission asker is that it further feeds the cycle of low self-esteem and self worth. The more you ask permission and opinion for these tiny mundane things, the tougher it is to do anything without others' approval. And if you do, and there's any disagreement/criticism/critique/it doesn't go right, it makes you feel like you should have just asked and listened to them in the first place. It becomes increasingly difficult to trust yourself, your thoughts, your opinions. Eventually, you become afraid to think for yourself, because surely, you'll be wrong. Might as well just by-step the "middleman" and go straight to the source - someone else. One day, you wake up and realize that you don't recognize your own thoughts or ideas. You don't recognize yourself. You're now this being made up of everyone else's thoughts and opinions. You're literally afraid to do basic, every day things, make simple decisions - even ones that you previously would have been confident in - without someone else's approval and permission, because your brain is so sure you'll do it wrong.

So stop. Stop asking permission for the things that don't matter. Nobody's worse off if you wear one shirt over another (assuming it's not their shirt you're choosing to wear). If you use the bathroom now or in 10 minutes. If you feed the dog or do the laundry or some other basic task now or in a half hour. Nobody's worse off if your wording in that email isn't exactly as they would have worded it (assuming you aren't strewing in profanities or inappropriateness or speaking on behalf of someone else without their consent... you get the point). If follow a recipe and it's not perfect ... well, it's not perfect. I'll eat something imperfect or order a pizza. It's just not that big of a deal, and it's not worth lowering your already low self-esteem by feeling like you can't trust yourself on these tiniest decisions and processes.

In constantly allowing others' permission or approval to determine your actions, thoughts, words, you're giving them control. And I don't mean control we all deserve - i.e. having a say in something that directly will impact us - but control they have no business having. As an adult human being, nobody but you should have control over your bathroom usage or which pair of jeans you wear or how you style your hair or anything else. It becomes a slippery slope - one that's dangerous for your self-esteem and self-worth. So give yourself permission. I know this isn't easy. Depression and anxiety don't want to let you do this. But it's so important. Listen to yourself. After all, you know you better than anyone else. And you're way more capable and able than your illness wants you to believe.

If You Wonder What It's Like To Have a Rapid Cycling Disorder, Watch the Whether

Not sure about where you live, but here in Philly, the whether has been fluctuating between drastically hot and sunny and Armageddon. This past week people were being rescued from roofs of their cars due to flooding on our major highways. Intense storms toppling trees, thunder pounding, lightening illuminating the sky.  And then twenty minutes later, I'd be putting on my sunglasses. Storms have been rolling through so quickly and tumultuously that streets are being flooded out in a matter of minutes when there were no clouds in sight just an hour before.

This, folks, is what its like to have a rapid cycling mood disorder. At least mine. Of course, I can't speak for everyone. Technically, rapid cycling is described as four or more mood cycles in a year. For me, it can be four or more cycles in a week, or even a day. Of course, this isn't always the case - and four cycles in a day is extreme even for me. But truly, I do go to bed every night having little inkling of how I'll feel in the morning. And even once I wake up, my mood often does not predict how I'll feel by lunch time, let alone the end of the day.

To clarify, it's not as drastic as they'd show in Hollywood, where I just completely do a 180 mid-sentence and you can't recognize me. In fact it's nothing like that at all.  I can feel the cycle coming on, when I'm awake at least. I'm especially on alert if I know there are contributing factors that tend to make me cycle - lack of sleep, for instance. Or too much external stimulus, a major change to my routine, not getting enough recoup time/self-care time. In these cases, much like watching the whether radar patterns, I can pretty well anticipate that I'm going to cycle.  But no matter how prepared you are, sometimes there's only so much you can do. You can try to time your day out perfectly, analyze all the weather forecasts, diligently study the radar, and still get caught outside when the skies decide to open up. Because sometimes, shit just doesn't go like you or anyone else thought it was going to.

So if the whether has left you frustrated these past couple of weeks, pouring down with little warning and turning sunny the minute you cancel all of your outdoor activities, know that I can empathize. This is my brain on any given day. And no matter how much you try to prepare, to do everything correctly, to take all the precautions, to carefully listen to all the storm warnings and predictions, sometimes you miss the mark, or the storm changes course swiftly and there's nothing you could do to change it.  And when that happens, you get to a safe space as quickly as you can and, as one apparently only does in big storms or serious flareups, hunker down until it lightens up.

Look Ma, No Meds

It's been a while since I've written. I've been going through some stuff, both enjoyable and .... less so. I was traveling to Spain, which was amazing. I was in a car accident that possibly totaled my car (I'm ok), which is not amazing. But mostly, I've been titrating down on my medication. I've been doing so since January, with my therapist/heath care team overseeing it every step of the way.

I'm decreasing my meds for personal reasons that I'm not ready to share yet, but I will say that it has nothing to do with my mental health. By which I mean, I'm not decreasing them because my health has gotten so much better that I don't think I need them. On the contrary, I have a lifelong condition and I know that one of the only reasons I feel relatively better regularly is my medication. Nor am I doing so because of anything wrong with my meds, or because I've become one of those people that thinks medication is evil and makes me a "pawn of the system".  Far from it.  Medication has most likely saved my life, and despite the nausea, dizziness, disorientation, numbness in my tongue and lips, and my personal favorite, the never-awkward intense night sweats, the side effects of my meds are not all that bad - especially not compared to I feel when not taking them. But I have my reasons, and they're good ones (at least I think so), and hopefully one day I'll be able to share them. Just not yet.

Still, I wanted to share my experience of decreasing meds, as well as some tips and some real talk, in case you find yourself in a position where you need come down off meds, either for prolonged time, or in order to switch to something else.

First a few (possibly obvious but important none the less) tips:

• Work with your therapist, psychiatrist, anyone and everyone involved. Do not attempt to decrease your meds on your own without professional help (caveat: I'm saying this for maintenance meds, not things you take as needed for specific symptoms one-off style).  

• In working with these professionals, set up a timeline from the beginning (obviously if you have to switch off for emergent reasons, this isn't always possible, but do your best).  Plan out the trajectory of your decrease before you even start, so that you know you're giving yourself enough time. Build in leeway in case you need to slow the decrease, or pause at any point.  

• Set your boundaries ahead of time. If you have experienced things in the past that are giant red flags of your health decreasing, note them. If there are things you just flat out aren't willing to go through in order to decrease meds, be honest with yourself and your therapist (and anyone else affected) from the beginning. They can serve as your markers for "this is going too fast, I need to slow down/I need a different approach/I'm not ready to do this right now".

• Document how you feel. Everything, even if you're not sure if it's related. If every time you downgrade a dose you notice xyz, make note of it. It may be a coincidence, but you never know. Share these with your health professionals. Look for patterns. Remember, you know yourself best. If something doens't feel right (besides the obvious fact that you're decreasing meds and may generally feel worse), then voice it.

• Try to keep everything else as routine as you can. This way, the only thing massively changing is your meds. Try to get up and go to bed at the same time. You may need to adjust your sleep patterns slightly  - i.e. going to bed earlier if it takes you longer to fall asleep, giving yourself more time to get going in the morning etc. But do the best you can to keep things routine.  Make a note of any adjustments you have to make, so you can find the balance that feels best (and I use that term relatively) for you.

• Have a support team, and build an emergency plan. Have "life lines" in place - loved ones that you can contact if you have suicidal thoughts, or are feeling extra ill and need immediate support. If you can, involve your loved ones, especially spouses/partner, in your overall plan. If they know what to expect (at least theoretically), and understand what you might be experiencing as you decrease, they can both be there to support as needed, and look for signs of particular concern.

Now, some less-pretty but solidly real pieces of info:

• There are going to be days where you feel like absolute shit. I mean, if you felt completely fine without meds, you probably wouldn't be on them, right? So naturally, as meds go down, the feeling like crap factor goes up.  This is totally "normal", for lack of a better word. So don't be discouraged. I'd venture to say virtually person going off meds for a reason other than "they no longer need these meds" is going to feel some ill effects. This is even true if you're going off meds because they aren't working well. You're changing up what's going into your system - it's going to affect it, especially at first.

• There isn't much pattern to the better versus worse days. Right after each decrease, especially if it affects your sleep, you may notice a significant change. But then you'll have a day where you actually feel pretty OK (at least speaking from my experience). Or two, three, five. And then bam - another feeling like shit day. That's the nature of the beast, especially if you're mood cycling.... because... it's cyclical. And that is going to become more pronounced as the meds decrease.

• You may well experience hours/days/weeks/months where you think, "how the hell did I even exist before I was on medication". I certainly did. I wondered how I made it through growing up, college, grad school, and general adult hood without the meds. Because we can still have really rough days on them (they're a treatment, not a cure), it can become easier to forget how even more terrible it felt without them. You're going to feel like there's no way you can do this. That if this is how you feel with a small decrease, how can you possibly continue to decrease, let alone go off of them all together. Again, totally normal. (Note: Listen to your intuition on this. If it really feels that you cannot, that it's dangerous to you to keep decreasing, talk to your health professionals. Especially if you experience suicidal thoughts). 

•  There may be days that you fail to recognize yourself. On these days, you're going to need extra self-love and self care. These are a crucial part of the process. You may need more time to get things done, or more frequent times to rest and take time for yourself. Coming off meds is seriously difficult, and takes a tremendous amount of strength. But as with anything that takes strength, it can be exhausting. It's extra important to take care of ourselves during this time. This is where involving loved ones in the process, to have them help you out with things around the house, errands, tasks, etc can be huge. If you build this into your plan, you allow yourself extra time and energy for self-care.

• If you're a mood cycler, or struggle with anxiety, you'll likely experience too much energy. "Too much energy?" you might say if you've been in a depressive cycle that makes it tough to get out of bed. And I get it, it seems impossible. But yes, too much energy. Our meds can, at times, make us feel sleepy or sluggish. As you decrease, you may notice you have more energy, don't hit that 2PM slump during the day, need less sleep at night. But this can quickly slip into mania or hypomania (if you cycle). Or all that extra "energy" may be the nervous energy of anxiety. You can go from feeling "wow I don't actually need a to crawl under my desk and nap" to not being able to concentrate, feeling anxious, jittery, on edge, and worse pretty, quickly. Keep just as much of an eye out for this as you do for increased depression. 

• There may be days where you actually feel pretty damn good. Not (hypo)manic good, but just good. Like a person without mental/chronic illness would feel on a daily basis.  And it's super tempting to think, "wow maybe I don't need meds anymore!" And if continues, by all means, revisit the issue with your therapist/psychiatrist/health professional. But more than likely, you're just having a good day(s). That's all part of mood cycling and mental illness. Even off meds, I'm not cycling up or down every moment of every day. I'm not anxious every breathing moment. My advice is, don't overthink it. Simply enjoy feeling better for the day or days or hours or whatever it is. 

Today is my first day without any meds at all. I took my last (extremely lowered) dose yesterday around 2PM. So as of this writing, it's been 24 hours. I'm actually not doing terrible. I have more energy, focus can be tricky, but I'm hanging in. On the plus side, I don't now have to pack extra snacks for random times so that I can take meds (I mean, I still do, I love to eat, but I don't *have* to). I also don't wake up in the middle of the night looking like I went for a swim in my sleep. So that's sexier less gross. But most importantly, I'm still here. I have even laughed and smiled today. I've texted with friends. I'm looking forward to spending time with my hubs and my dog this evening. I'm hanging in. I know there will be tough days, as there always have been, but I'm making it through.

If you are contemplating decreasing your meds, or have to decrease your meds, or are going through this right now and need to vent, please, reach out. I may not have your exact experience with your exact medication, but I have gone through it, and come out the other side. I'm here for a vent, to be a shoulder to lean or cry on, or to give advice where I can. So please, if you need, reach out. I'm always here to listen.

I Have An Illness

I am not "so dramatic", I have anxiety.

I am not always "looking at the glass half empty", I have depression.

I'm not running a mile a minute and talking nonstop because I think I'm so important, I have hypomania.

I'm don't just "cry about everything", my illness makes me feel lost.

I'm not "needy" and looking for validation, I'm asking for support during depression.

I'm not selfish or lazy, I'm hurting mentally, emotionally, physically.

I'm not weak, I'm sick.

I'm not "always complaining"; I'm sharing my deepest thoughts and struggles because I trust you.

I'm not "making mountains out of mole hills,"  my anxiety and hypomania won't let my brain rest until certain things are done. It feels like I'm being mentally eaten alive.

I don't need to be fixed or "taught the right way to think or act" or molded into pretending I'm the version of OK that society is comfortable with. I don't need to "just suck it up".  I don't need an attitude adjustment or to be more grateful. I don't need you to tell me that the way my brain works is wrong. I don't need to be made to feel bad or guilty or less for having a illness I never asked for and battle against every day of my life. It is not a choice. I have an illness.

Discouraged

I'm blogging from a not very good place today, but it needs to be done. I have had a lot of blogs in holding patterns that I need to put out (I know it's been a while), but I need to do this. For myself. No offense. I need to get it out before it eats me alive, as my emotions tend to do.

I'm so incredibly discouraged. About everything. I'm trying to raise money for my overnight walk for suicide prevention, and getting friends to donate even $1-5 (that's literally all I'm asking, there's no minimum) is like pulling teeth, but the minute someone mentions girl scout cookies, everyone tramples each other to get in line. This is nothing against girl scout cookies (I don't really like them but that's my own thing), or the girl scouts, but you're telling me people can't afford a box of thin mints AND a $1? Ever? No matter how much I'd be willing to do for them?

I'm trying to make a go of Spread Hope Project and feel like a complete failure. I watch the most mundane tweets, posts, Instagram pics get hundreds of likes and I try so hard with my efforts and get maybe a like if I'm lucky. And zero action beyond that. No comments, shares, etc. No growth. Nothing that I could actually turn into an organization like I want it to be. The fact that I have a  M.S. in Marketing and can't get this off the ground, the same way I feel like a failure at my travel business (more on that in a minute) makes me feel even more horrible *because this is one of the few things I actually think I'm somewhat good at.* For someone who has almost literally no self-esteem, being made to feel, or sometimes outright directly told, that one of the very few things, and I mean very few, that you feel like you are good at, could succeed at, you're not, is so discouraging that I can't describe it. It's beyond discouraging. It all but breaks you. Especially when you are already depressed.

Now, my travel business. I have close friends and family tell me all about the great trip they just went on... that they didn't once reach out to me about. I don't even mean "oh it was just a flight and you don't make money on that so I didn't bother you" but TRIPS EXACTLY LIKE THE KIND I BOOK AND WOULD HAVE GIVEN A BIG FRIENDS AND FAMILY DISCOUNT ON MY RATE FOR. I'm not even saying they asked my advice but couldn't afford my fee or got AMEX points, got a cheap flight deal they couldn't pass up. I'm saying I found out afterwards in a Facebook post or email that they even took a trip.

All the advice givers say "ask for help". So I do. Please help me brainstorm for Spread Hope. Please donate to my walk. Anyone want to partner on xyz? Please read my blog. People say, "follow your dreams," but if I tried to live on following my dreams I'd be homeless without my parents' support (thank goodness for my parents). When I try to follow my dreams I get told it's not realistic, that nobody has the time to help, that its' "not their thing" (neither is car repair mine, but if you wanted to open an auto body shop I'd still attempt to help you brainstorm even if my suggestions were ridiculous). I'm told it's not practical, not logical. I'm told to be confident but then when I stand up for myself and say what I want, I get all of the above.

There are exemptions to these, of course. I'm lucky to have a few people that are eternally supportive of me being me, whoever that is and whatever I choose to do. I'm not asking for cheer leading here (in fact, please don't). I'm not asking for critique - I get enough of that. I don't need to be told what I'm doing wrong because right now it feels like literally my entire existence is wrong. The world is made for extroverted task-master doers who follow logic, and I'm a introverted restless soul creative who believes in following dreams and not missing your life for tasks because you never know when you wont have the chance. The balance is probably somewhere in between but I've yet to find it.

So I get all that. I'm simply getting this out because it's tearing me up. And because maybe somewhere someone else feels this way too, and I want them to know they aren't alone. 

The Most Important Thing I've Done Is Survived; and Sometimes, I Even Live

When you battle depression, you know that often the best you can do is just get through the day. You may not be breaking any records, or busting through your to do list, or even showering. Some days, getting through the day is what matters most. If you lay your head down at night in order to be here tomorrow, you've accomplished the most important thing you can - you've survived.

For those who don't battle depression or chronic illness, I think this is a difficult concept to truly understand. For them, surviving is second nature. They don't have to think about it, wonder if it'll happen again tomorrow.  They don't go to bed at night with the sole accomplishment of still being here. Instead, they look at the things they haven't accomplished: the house needs to be cleaned, they need groceries, they have to do this or that chore or task. And don't get me wrong, my anxiety rails through all of that too. Repeatedly. But the thing is, if I weren't here, if I hadn't made it, it wouldn't matter one bit how clean or not the house was or how full the fridge was.

And so, I admit, that sometimes my priorities seem a little "messed up" to the observer. The house desperately needs to be cleaned and I'm planning a hike or a day trip or a drive to the beach or something of a similar fashion. Or I'm relaxing, listening to the rain or enjoying the sunshine on my face. Sometimes, I go for a drive simply to enjoy the warmth of the sun (streaming through my new panoramic sunroof!!), the open air, and the musc. And understandably, people probably feel, If you're going to be out on a drive, could you maybe stop and pick up xyz while you're at it, because you're running out?! And yes, I probably should. I probably need bread or beans or a replacement light bulb or something from CVS or whatever it is. And I may stop and pick it up (ok, usually just the CVS, big stores give me anxiety). But you know what I really need? I need to have these happy, sun and fresh air filled moments  to pull me through when I cycle back down. If not, I'm spending all of the times I actually feel ok filling obligations, only to slip back into depression without being able to remember what in life there is to truly enjoy.

And so I perhaps do not make a very good adult. I do not see the point of spending the majority of my time doing the mundane things that will never be my legacy. I'm not saying I'll live in a pigsty or starve, but I just simply don't get the need to have this all perfectly done, all the time. And maybe there's a compromise. Maybe I can run into Whole Foods once a week, spend 30 minutes tops  (I can honestly get all my shopping done in this time), and have had healthy meals all week. And when I am running out of TP, I can stop at CVS for 10 minutes max. No need fora full day dedicated to these things.

I realize this is frustrating for people in my life. I wish I was content to do the everyday adult life things. I really do. It would be so much easier on those around me. Not to mention I'd have a full fridge on a regular basis, and a cleaner house. I know it seems irresponsible. And I'm trying to find a balance, I really am. I'm not sure where that lies.

Maybe it's just me. And maybe it's the fact that I feel my time to actually feel alive is limited, since illness hits me so often. But I just don't think I'm going to lie on my deathbed wishing I'd done more chores. I do think, though, that if I stick to those "have to"s, that one day I'll look back and think, What did I do with my life? And moments of life can be so precious, that I can't imagine why I'd want to live that way.

Me in Ronda, Spain, after a sunrise hike. The ultimate in enjoying a good day!

When is Enough, Enough?

There often comes a point in life when you feel you must say "enough's enough". I don't entirely get the etymology of that phrase, but anyway, a phrase it is. The point being, at what point do the costs outweigh the benefits. In some cases, this is literal. In others, it's figurative. When you're living with a chronic illness, you may well deal with both.

Those of us that have illness(es) every day of our lives are used to living, what we call, low on spoons. There aren't a lot of days where we feel we're 100 percent ready and ready for anything life throws at us (caveat: some people have told me they feel this way in a manic episode. I only feel jittery and agitated in mine, so I don't experience this). And generally, we persevere. We are spouses, parents, employees, bosses. We volunteer or we participate in community activities. We try to live our daily lives as "normally", for lack of a better word, as we can. We may need more naps or to go to bed earlier or to take a break once in awhile, but we keep plugging along.

But at what point do you no longer do that? At what point do you say, "my health, my sanity (in my case) has to come first"? At what point do you finally decide that something's has to change. At what point do you say, "This is going to be a really difficult change, and it may even affect those I love, but so will losing my sanity, and I'm headed straight down that path"? And how do you do that? How do you tell those that are depending on you, often in numerous capacities, that you have to chose your sanity? How do you explain that it may seem like a drastic decision, like a short term solution, but that losing your mind, which you are actually close to doing, will be a much longer term problem? How do you get that courage, that conviction?

It's ideal, of course, if others are the ones to suggest the changes. If your loved ones say, "Listen I know you love volunteering at the xyz or participating in the abc, but it's having a terrible effect on your health. Maybe you should take a break." Or if they say, "I know you're trying to be everything to everyone, but let me take over xyz for a little bit." It may even be them supporting a career change, or you taking a chance and choosing to go after a dream. Of course, some are bigger decisions than others. Suggesting you leave the PTA is not the same as suggesting you reinvent your career in the middle of your life. But my point is, it's ideal if they come to you. Because it takes away a little of the guilt. And yes, there shouldn't be guilt for putting one's health and sanity first. But at least for me, there's always this nagging, "What if I just wasn't trying hard enough?" What's ironic is, I would never feel this way about someone else. I'd be 100 percent behind them making whatever changes they need to. I'd understand exactly how they feel, and I'd be the first one to tell them that if they don't have their health and sanity, that they can't be there to help others, so in the long term, it's best for everyone. But when it comes to myself, I'm always managing to convince myself that I can't let anyone down, or put anything at risk. I always manage to convince myself that I just have to get through it, because I'm failing otherwise. We are, I think, our own worst critics. And so someone else being on your team, looking at things from the perspective of your health and sanity instead of the perspective of "how things normally go" or "the most logical solution", is one of hte most amazing feelings one can experience. And for it to be their idea, for them to be behind it lessen the self-criticism, is amazing.

But sometimes, that isn't the case. Sometimes it feels that nobody truly understands what is going on inside your head. You look ok. You're holding it together. You had a good day/week, and that makes them think it's not that bad. And it's understandable, I suppose. They see you've gotten through everything else. They think it's a kneejerk reaction, or that you're so emotional that you're not thinking it through. They don't understand the battle raging in your head. The battle that you're losing more quickly each day. So what do you do? When, and how, do you say, "Enough is enough"?  Have you done this? I would love to hear your stories. 

A Letter To Myself On the Day I Was Diagnosed

HAMC Day 4:  Do you remember the day you were diagnosed?  Perhaps you were scared, felt alone and surely you had tons of questions. Write a letter to yourself for the day you were diagnosed, knowing all you do now.

Dear Maya, 

I know this day is a mixture of virtually every possible emotion. I know that right now you are both relieved that you finally can put a name to what's been happening, and scared of what that means for your future. I know you aren't completely surprised by your diagnosis, and at the same time frustrated as hell that every other health professional you've seen for the past eleven years ignored you when you told them that you were battling more than just situational stress. 

I know you have a lot of questions. I hate to be the bearer of bad news, but those questions don't end. Every time one is answered, another is presented. Each time it seems like you understand your diagnosis and how it affects your brain, your emotions, and your body, it'll throw you a curve ball.  I'm sad to say that I don't have all the answers. I'm still figuring them out myself. As you'll come to understand, maybe already have begun to from experience, mood cycling by nature is unpredictable. Depression might present itself one way one month, and a completely different way the next. Hypomania may mean being extra productive one week and completely distracted to the point of utter frustration the next. Some cycles will last a two weeks and some will last two hours. They say the only thing constant is change. Whoever "they" are, boy are they right. 

Be prepared for the meds. They're doozies. The dizziness, the nausea, the disorientation, the numb lips and tongue. But it gets better. You get to used to them. Of course, each time you do, the dose increases until you reach your proper daily does, but eventually, I promise it doesn't feel so crappy. Most days, you'll take your meds as nonchalantly as you brush your teeth. Trust me on this one and stick them out. Therapy too. Keep going. It'll be well worth your while (and money - by the way, start saving up for those costs now). 

There's good news too. Life will settle down. You'll always cycle, but you'll learn to live with this illness. You'll learn to use it as an opportunity to help others. You'll discover pieces of yourself that you never knew - creative, artistic pieces that help you express your emotions when it seems you can do so no other way. And believe it or not, this illness will help you learn who to keep in your life, and who to separate yourself from. Not everyone will accept your diagnosis easily, but more people than you think will understand. In fact, you'll find understanding and empathy in people you never imagined went through similar struggles. 

You have a long road ahead. I know it's confusing. There are so many facets to consider now that you have a starting point in knowing your diagnosis. Take them one at a time. Focus on the most crucial first. Learn everything you can. Arm yourself with information from trusted and unbiased sources. Ask questions. Build a support network. Create a plan of action and go from there. You will battle this for the rest of your life. Some days will be worse or better than others, but it will always be there, lurking in the background, even when you can't feel it directly in the moment.  And some days, weeks, months even will really suck. But you will get through it. When you're not sure how you can possibly keep going, just remember to put one foot in front of the other. You'll be ok. 

Why Do I Blog About My Illness?

Happy November! November, for those who don't know, is National Novel Writing Month (NaNoWriMo), which every year I say I'm going to participate in and every year I sadly do not. But lucky for me, there's another writing challenge this month that I'm much more likely to stick to, at least on a somewhat regular basis, and that is the Health Activists Writers Month Challenge (HAWMC), hosted by WEGO Health.  I'll be blogging daily based on daily prompts, so posts will probably be nice and random - just like I like them.

Day 1:  Why do you blog? 

For nearly the first almost three decades of my life, I thought that I was allergic to red food dye. That was my diagnosis, at the age of two, when I started having "episodes".  The doctor told my parents that the red food dye in the cereal I'd eaten (I want to say Captain Crunch but I may be wrong here) made me "hyper", and I was to avoid red food dye. I spent the next 28 years doing just that - admittedly, not a tough feat, unless you count the cherries in Old Fashioneds and Manhattans. But though the "episodes" calmed down for a long stretch of time, in part due to intense gymnastics training that helped with a lot of the extra "energy", in part writing them off as just being an aspect of my general personality, they didn't stop. They started back noticeably when I was in my early twenties and got increasingly worse, to the point that I'd have someone (my then-husband) hold my arms and legs so I could punch and kick the air to release all of the pent up "energy", for lack of a better word. In between these episodes, went through periods of feeling lost to myself, which grew in frequency. Finally, weeks before my thirtieth birthday, I was admitted to the ER with what I thought were horrendous panic attacks that wouldn't go away. Long story short, I was hospitalized, and upon going back to my therapist afterwards, was diagnosed with rapid cycling cyclothymia, a rare mood cycling disorder.  It was this that had actually sent me to the ER.

I had never heard of cyclothymia, and as it turns out, neither have a lot of people - even medical professionals. It's that rare - something like 0.04% of the population is diagnosed. I noticed that there was very little information accessible to the general public about my condition, yet there seems to be a massive amount of stigma. I realized that people don't have to know anything about your condition in order to begin stigmatizing, especially when it comes to mental health. To so many people, it's all the same. In fact, it's the lack of information, and the education, that feeds so much stigma. And so I set out to do my part in righting that. To tell my story, so that others have first hand accounts of what my illness is like, and to offer support to those who also battle, or feel that they may.

What do I want people to know about my condition?

• It is not bipolar disorder. Often I have to choose that from the little drop-down box of illnesses on online forms with health history, but it is a distinct condition of its own, that shares many similarities with Bipolar Disorder. 

• I cycle between hypomania and depressive episodes, sometimes as often as several times a day. While many people battle more depression, I battle more hypomania - which is not as fun as it sounds. Hypomania, I often tell people, feels like drinking an entire pot of coffee at once on an empty stomach and then trying to go about your average daily routine. You feel jittery, irritated, unable to focus or concentrate. It's in fact very frustrating. 

• I'm not always cycling. Sometimes I'm neither hypomanic or depressed - many times, in fact. Nor do I cycle mid-sentence, like the media would have you believe. I slowly begin to feel the warning signs, which generally only I can feel, and it begins to gradually transition. Again, using the coffee example, the first cup is probably ok, the second cup may make you a bit extra energized, by the time you've finished the pot, the effects are full-fledged. 

• I battle anxiety because of my condition. I've developed social anxiety, phone anxiety. This is not uncommon. 

• I can do "normal" things and have a "normal" life. I run my own business, work part time at a conference center, own a home and a dog, am in a committed relationship, and have been on several volunteer board of directors. I've also traveled to six continents and over 40 countries. 

• Not everything I do or say or react to is because of my condition. Sometimes, I'm happy or sad or emotional or annoyed or angry at something just as anyone else would be. 

• My condition does not make me weak. Just because I'm depressed or crying or feeling worthless or hopeless does not make me weak. I, and others with similar conditions, have to be incredibly strong just to get through some days. 

• I will always have this illness. It is genetic.  I was born with it, and I will have it for the rest of my life. I can't "get over it".  It just gets better or worse. I've accepted this. Please do so as well and stop waiting for me to "snap out of it." 

• I'm not lazy or over-reactive or not trying to hard or dramatic. I can't just relax or calm down. I can't just think positive thoughts or smile or be grateful. 

• Sometimes the best thing I can do is rest. I need that time mentally and physically. Sleep is critical for mood cycling, and my condition is very draining. Doing every day tasks can feel insurmountable at times. 

In addition to Cyclothymia, I also battle Chronic Fatigue Syndrome, "severe" (doctor description) IBS, vertigo, and various forms of frequent migraines. While I don't discuss these often, I do occassionally post about them, especially as they intertwine with my mental health. 

I'm Not Just Sad All The Time

When people find out I suffer from a mood cycling disorder, they're often surprised. Maybe not at the cycling part so much - I'm a very emotional and passionate person by nature, and people frequently experience my "ups and downs", but more so on the fact that I suffer from depression as part of this. I think people tend to think of me as just overall emotional, and that I'm often down based on a certain situation or circumstance, but I'll bounce back up quickly enough. This is image is aided by the fact that, unlike many mood cyclers, I have significantly more hypomanic episodes than depressive ones, and when depressed, I often feed into my introverted tendencies and make myself scarce.

By the nature of mood cycling, I'm not always exhibiting signs of depression - because I'm not always battling it at the moment. But even in depressive cycles, I'm not always exhibiting what those without mental health conditions would think of as depression. Depression is so many things, and I think the best way to explain it is to answer some of the most common questions I get about it.

So your depression comes and goes?
Well, yes and no. It comes and goes because I cycle. But even in a depressive cycle, it's sometimes more evident - to me and those around me - than others. Not all depressive cycles are alike.

So you're not just always sad? 
No, I'm always depressed when I'm in a depressive cycle, but I'm not always just sad.

What's the difference? 
Sometimes I actually feel sad, or I guess that's what you would call it. I cry a lot, I feel really, really, really down. It's an incredibly deep level of sad. But there are so many other feelings that accompany depression: hopelessness, worthlessness, lack of ability to focus or concentrate, mental, physical, and emotional exhaustion, and the worst, nothingness.

Nothingness? 
Yes, the inability to actually feel anything. Like your emotions have been siphoned out of you,and you'll never feel anything ever again. You would even prefer to feel sad or hurt or angry or frustrated, anything, than nothingness. It feels subhuman.

So when you're sad, then you're just sad, right? 
Not really. It's like a sadness. But a sadness that doesn't need an additional cause. If you think about it in terms of other illnesses, it's easier to explain. When someone has asthma, it can be triggered by certain things (allergies, air quality, increased physical activity, etc), but sometimes the reason they have trouble breathing is simply because they have asthma. There's no other trigger. Depression is like that. Sometimes, a trigger can throw me into depression.  But often, I'm just depressed because I have depression as part of my cyclothymia.

So are you ever feeling normal? 
(After recovering from laughing at the thought that anyone could think I'd be normal even without illness). I hate the word normal. Nobody's normal. I sometimes don't feel ill. I sometimes am not depressed, or hypomanic, or anxious, or experiencing any other symptom or stages of my condition. But it's always there. Always. It's like walking around with someone holding a bucket of water over your head that could get dumped on you without much warning, at any time. So I do have times where I guess you'd say I feel "normal", but I always know a cycle is not too far off, and it's hard to feel "normal" with that knowledge, though I try the best I can. 

Growing Awareness

About a month ago I wrote about the a-ha moment in which I realized that my condition could empower me to help others instead of being something I "suffer" from (you can read that post here if you're so inclined). Since then, I've worked on making this blog a combination of my experiences and information/suggestions for others going through similar situations. Because I'm not a trained psychology professional, I really have just my personal experiences and those of others I know with mood disorders as fuel for my blogs. Still, I hope that through this I'm able to provide some helpful tips, or at least let others know that what they're going through isn't uncommon and that I'm hear to offer support, or even just lend an ear, if desired. Since I started this mission with the intent of helping others, I thought I'd reach out to you (collectively) for ideas on how best to grow this campaign, and what you feel is most needed and effective.

When I started to focus on mood disorder awareness, I'll admit that I wasn't quite sure of what I wanted to do. In other words, I didn't have much of a plan. To be honest, I still don't entirely.  The reason is several-fold. First and most practically, I own and operate Chimera Travel, and right now this is what pays the bills. I love my business, and I want to still be able to focus on it and give my clients the personalized service they've come accustomed to, so I need to make sure I'm balancing my business with these new efforts. Secondly, I have just haven't done anything like this before, and I want to make sure that my goals and vision align with the steps I'm taking to get there. I want to go about this the right way, and meet the needs that aren't currently being met when it comes to mood disorder awareness, education and support. 

My basic, and very loose, goals are the following:

• Offer information and suggestions through this blog for those that have mood disorders and even loved ones of those that have them.  By growing the following, I hope to increase my reach with this. 
• Provide a forum for open discussions on mood disorders and topics that surround them through the Mood Disorders Support System group on Facebook. 
• Work with, not against or in contrast to, any existing systems or groups that already exist. Mood disorder awareness should not be a competition - that won't help anybody! 
• Eventually grow the online group into local support/education groups where applicable. This is a particularly loose goal, as I'm not sure if I'd prefer something that's solely for mood disorder 'sufferers', for education of others that might not be aware of/understand mood disorders, or a combination. Thoughts?
• Some sort of fundraising for awareness, education and research of mood disorders. I've looked and looked for some sort of national organization/association that focuses on mood disorders, and I've been unable to find one. I'd love to eventually partner with something like this, even on a more local level (say a state level), but there really doesn't seem to be much out there that I can find, at least not in the U.S. 

So my questions are: what other/alternative goals do think such a mission could or should have? Do you know of any local/national efforts, groups, organizations or associations that I could maybe work with in the long run? What other information or suggestions might you be able to offer and what would you personally like to see happen that you feel is currently lacking in mood disorder awareness/support/education? 

This blog truly depends on your feedback, so I'd love to hear from you. I'm working on getthing this whole passion and idea more focused, and creating an overall vision and goals, and eventually the steps to get there, is the first stepping stone (after deciding to do this at all).  Thanks, as always, for your thoughts!